For those suggesting we read blogs or other stories for hope about having a child with Trisomy 18.
I’m learning the majority of those stories are those with Mosaic Trisomy 18, if it’s said what type of T18 it is.
Mosaic is more forgiving and can allow a child to live longer.
I’ll share some information that hopefully will be helpful.
“Mosaic Trisomy 18: Mosaic trisomy is also very rare. It occurs when the extra chromosome is present in some (but not all) of the cells of the body. Like full Trisomy 18, mosaic Trisomy is not inherited and is a random occurrence that takes place during cell division.” https://www.trisomy18.org/what-is-trisomy-18/what-are-related-conditions/
What this means is there is a greater chance of a life lived longer and rare occasions children (especially girls) may live to their teens or early 20s.
Our baby girl has Full Trisomy 18, which means she has an extra chromosome 18 in every cell of her body. She is not expected to live very long and could pass before or shortly after birth.
We still hold onto what little hope is left for a miracle however remaining realistic and don’t want to get our hopes up too high.
Much love. ❤️
Comments
Post a Comment